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"We are in a critical situation that is getting worse daily.”
“Pioneer” of Supported Living, Level 3 now at risk for losing independence.
Sasha’s family is in crisis. Sasha is depressed and has an eating disorder. Her mother is exhausted from the never-ending stress of trying to get services for her. She is the sole caregiver for 25-year-old Sasha, who is adopted. Sasha has Fetal Alcohol Spectrum Disorder and cannot live alone.
The Innovations Waiver is supposed to support Sasha. She is authorized for Waiver services to help her live in the community. But the provider agency cannot find staff because of low pay. The MCO cannot locate an appropriate AFL. Supported Living won’t work because there are no providers. “I have the time, knowledge … and [resources] to focus on getting my daughter help and to be successful,” Sasha’s mom told us. “Yet I cannot make this happen.” Without services, Sasha’s mental health worsens.
Recently, because no respite care was available (despite eligibility for 500 hours), Sasha had to go to the emergency department. "We are in a critical situation that is getting worse daily” her mom says.
Dylan is living his best life. At 29, he has his own place. He is happier and doing better than at any other time in his adult life. He’s an active part of his community. He swims, grocery shops, goes to the library and volunteers. He has his own business: shreddingtogo.com. Dylan also has autism, and needs round-the-clock help. But he gets to choose how to spend his time with the supports he receives under an Innovations Waiver service called Supported Living. Now, Dylan might lose it all. His current provider is dropping him and there are no other providers willing to take him on as a client. They say that Dylan’s care is too expensive. Dylan’s family worries that he will have to go back to a group home or an institution. Last time he was institutionalized, he was seriously injured and spent ten days in the hospital, unconscious.
Has something like this happened to you? Share your story.
Learn more about Dylan and the nonprofit his family started: https://www.hopenorthcarolina.org/our-story